Guest Post: Spread the Word

I’m writing this post while I am listening in to an online webinar. Why am I multitasking? Well the content is really interesting, but one of the hosts just had an experience fumbling around trying to figure out how to run the webinar and she apologized to us by saying
“Oh I’m so retarded. ” My heart sank. I stopped hearing anything else that was being said and I typed a message to the host that said,

“The word retarded is offensive to me, my son has Down syndrome. Please refrain from using that word to make fun of yourself. It is disrespectful to people with developmental disabilities. Thank you.

She did write me back during the webinar ( just a few moments ago) to say she was sorry about that and that she will [refrain].

I wonder if that moment between the two of us will make a difference the next time she thinks of using that word? I have no idea. But for me, it’s important to advocate for my son and others who have intellectual disabilities.

I know that most people have no idea that the word “retarded” could really be hurtful. And just so we are clear, I used to use that word myself. I had no clue. I wasn’t ever told that the word could be hurtful. I had never made the connection. It just seemed like a word used to make fun of myself.

However, on February 4th 2009, my understanding of the word changed when I gave birth to my son Max. I learned early on that the way the word retarded is used really does hurt people. I realized it was up to me to share the information. It was up to me to change my own language. It was up to me to advocate for my son. I don’t get angry when someone says it… well maybe a little. Mostly my heart sinks because I know I need to say something to advocate for my son and it’s not always an easy thing to bring up. Some people get defensive, argue with me and feel the need to tell me I’m wrong. I usually just say to someone “ouch, that word actually hurts me when I hear it.” It’s a new experience every time I hear it. I’ve learned ways to be helpful instead of being mean to them. That never works. Trust me. I have to remember not to take it personally, but to use the opportunity to educate with a loving and understanding heart.

The other day I had to take my son to the doctor to check his ears for infection. When the doctor came in to see him, he said “Oh you have a Downs.” I hear this a lot and it makes me shudder. No actually, I have a son who has Down syndrome. Not a “Downs,” or a “Downs baby.” It’s a shift in language that puts the individual first and the diagnosis second. My son is not his diagnosis. He is an incredible little boy with a lot of unique characteristics that make him who he is. Another example would be if someone called my friend who has cancer a “Cancer girl.” Or a “Cancer.” No she is not the diagnosis. She is a girl with a name who happens to have cancer. It’s the same with children and adults who have autism etc. Language Matters.

“Spread the Word to End the Word” Is a message that I feel strongly about. John C McGinley from the tv show Scrubs shares his feelings about the word retard and retarded in this video. He too has a son named Max who has Down syndrome.

I’ve made the commitment to replace the word “retarded” with the word “ridiculous”. Won’t you join me?

-Catherine Just is an award winning, published photographer gracing the cover of National Geographic and inside Oprah.com. She leads Soul*Full retreats for women and the Soul*Full eCourse. She’s also the proud mama to her son Max Harrison who happens to have Down syndrome.
You can find out more on her website at http://www.catherinejust.com or on Max’s Blog http://www.hang-on-little-tomato.blogspot.com

For more information on Down Syndrome:
NDSS

I have a confession to make…

I have a confession to make. So first let me set the scene, I’m with my 16 mo. old daughter and she reaches for something. Now I have to quickly decide whether it’s safe for her to have. If it’s not, I feel pretty justified in wrenching it forcefully from her grip. Scissors, sharp knives, push pins, and electrical cords are all things in that category for me.

But then there are other times when I simply don’t WANT her to have the object of her desire. The truth is, sometimes I grab stuff away from her. Wow, I feel so vulnerable sharing that. And I feel awful afterward, especially if she’s left upset and crying. So I’m declaring right this moment that I’m committed to stopping this behavior. I will no longer grab things from my daughter (unless they’re truly dangerous items).

You might wonder what alerted me to the behavior in the fist place. Well, let me tell you. A couple of weeks ago my wonderful mother-in-law (who takes care of my daughter two days a week) came home from the library with a story about how my daughter had walked right up to another child and grabbed the book she was holding away from her. I’m sure it was an awkward moment for all involved and I was reminded of this blog post by Leslie that really inspired me (funny that her story happened at the library too).

After I heard about the “incident” at the library, I began to get curious about where my daughter had learned to grab and more importantly, why I hadn’t been teaching her how to ask nicely when she wanted something from someone else. And in the midst of my inquiry, I realized, I’ve been modeling the very thing she did. Whoa.

So, now that I’ve noticed the behavior that isn’t working for us and I’ve declared my new commitment to honor my daughter more fully, I have to come up with some strategies to help me keep my commitment. The first one is to plan ahead and keep items I don’t want her to have out of her reach entirely. So I’ll go through a few problem areas (like next to the diaper changing station) and reorganize, placing baby unfriendly items away in cabinets or boxes that close.

But I also need a strategy for the times when she does get something that I don’t want her to have. In those moments, I’ll take a deep breath and remember my commitment and then I’ll ask her for the item. If she refuses, I’ll ask her for “my turn”, or I’ll follow her around until she loses interest and then remove the item to a cabinet or drawer.

OK, so now I have my new commitment and my new strategies. I think I’m all set!

The only thing left is to process the feelings I have about how I’ve behaved in the past. I feel guilty about having ripped things away from my daughter in the past. I feel ashamed of my behavior and I’m judging myself as “immature.” And…my deepest truth is that I really was doing the best I could in the moment. It’s just that my best is constantly changing and grabbing things away from a young child no longer makes the cut.

Now I don’t expect my toddler to stop grabbing simply because I’ve stopped, but since we’ve also started talking about taking turns, I’ve noticed a big change already. After just a week or so of discussion, she now walks up to me, puts out her little hand and says “Turn?” My heart melts every single time.

Is this something that you struggle with too? If so, please leave me a comment. I’m out on a little bit of a limb here, and I would love to know that there are other people out here with me! Or maybe your challenge is slightly different, but I would still love to hear about it. We can support one another in making a change!

Sending you all warm hugs, Shelly

Educational programming increases violent behavior!

Another shocker from “Nurture Shock,” preschoolers who watched educational programming increased in violent behavior almost as much as kids who watched violent programs did. Researchers were stunned when their data revealed that educational shows significantly increased relational violence in preschool aged kids. That means that the more educational television a child watched, the more likely they were to withdraw their friendship, tell others “You can’t play with me,” and lie about their friends. Kids were more bossy, controlling and manipulative, the more educational programming they watched!

Upon further investigation it was discovered that children’s programming is full of examples of relational violence, and often most of the program was about setting up a conflict and the resolution only happened for a few minutes at the end of the show. Unfortunately for preschoolers, they aren’t developmentally able to follow the story line very well, so they end up learning from everything they see, rather than learning the moral of the story. Oops!

OK, so here’s where I come down hard on all television and tell you that young people are infinitely better served by playing games, reading books, contributing to the household, and engaging in pretend play. But you already know all that, and it’s still challenging to keep the TV off. So here’s another take. If you feel you must allow your preschooler to watch TV, try watching along with them and talking about what’s happening.

Children learn best from real live human beings who engage in a dialogue with them. So, your little one is much more likely to understand the moral, if you talk about it together. You can mute the commercials and use the time to process what’s happening in the show. Probing questions like, “How do you think Arthur felt when his friend didn’t want to play with him?” or “What can Word Girl do to help her friends?” can help your child clarify and understand the story line.

I know this doesn’t solve the problem of the most common use of television, to get a few minutes away from the kids to do an adult task, but I have lots of articles and information about how to help your child engage in independent activities. So if you need a few minutes to yourself, I recommend setting them up with an engaging task, rather than plopping them in front of the tube.

So far, my daughter has seen about 10 minutes of television in her whole 16 months of life, so I think it’s pretty clear where I stand on this issue. But I can imagine that as she gets older we will allow her to watch some nature shows and an occasional movie. But you’d better believe, I’ll be right there by her side, describing, sharing, showing, and educating her about the emotional content of the programs she watches. After all, I can’t think of much that’s more important to me than her emotional education. And since I also have a strong personal commitment to compassionate communication, I want my daughter to have the information and tools she needs to empathize and connect, rather than to hurt and tear down others.

If I really start to think big, I’d like a complete overhaul of children’s programming so that it promotes compassion and emphasizes the resolution of the conflict, rather than the creation of it. Who’s with me?

Please leave me a comment and share this with your friends. And have an awesome day, Shelly

Whispering Magic

Thinking back to all the times when I was in a classroom or a house full of kids who were all running around and screaming their little heads off I suddenly remembered the one thing that turned yelling into quiet voices. I whispered.

Now you might think that whispering in a room full of screaming kids wouldn’t have much impact, but I’ve found that screaming is the thing that makes the least impact. The kids just thought I was playing along with their game and continued to scream unless I really lost it, which I later felt bad about.

Instead, I did the opposite and got an almost immediate response. First I thought of a secret to tell. Then I went over to the loudest child and tapped her on the shoulder cupping my hands around my mouth as if I were about to whisper. Then I whispered the secret to her. Usually my secret had something to do with a delicious snack waiting for them in the other room or a really fun game or activity I had planned, but inevitably, the whisper was the thing that made the biggest difference.

My daughter has stopped nursing herself to sleep when she’s going to bed at night and instead prefers to cuddle to sleep. But if she’s really squirming and unsettled I simply begin to whisper a story to her and she’s often asleep within minutes. Sometimes she’ll whisper parts of the story back to me, but she ALWAYS stills her body and listens intently. It really doesn’t matter what the story is about, it can even be gibberish, the important thing is that the message I’m sending with my whispering is that it’s time to relax and rest now. And the message comes across loud and clear…or quiet and clear in this case. ?

I’ve even used whispering to stop a child from screeching wildly when she didn’t get what she wanted. Sure there are times when it’s important to allow a child to fully express her upset, but this particular child was using the screeching as a way to get my attention. So I gave her my attention, but I changed the rules of the game. Whenever she screeched, I would walk up to her, whisper in her ear, and then if the screeching continued, I would walk away. She almost always followed behind me whispering about the topic of choice. Because it wasn’t screaming that she most needed in that moment, it was my full attention.

I know it can be difficult to remember this when you’re in a room full of people who are yelling to be heard, but sometimes going against the grain and doing the opposite of what the crowd is doing is the perfect way to shift the dynamic.

My husband and I even use this technique when we’re dining in a very loud restaurant. If I can’t hear him, I just slide into the booth on his side of the table and we snuggle up and talk quietly to one another. Often, the noise level in the whole restaurant will go down. I’m not really sure why it works, but I’m sure glad it does!

So the next time you’re in a room full of loudness, try whispering and see what happens. I would love to hear how it goes. Please share your story with me in the comment box below.

And have a fantastic week, Shelly

New Parent Social Isolation

Wow, I feel like I’ve recently emerged from a long winter’s sleep. My daughter is now 15 months old and suddenly in the past month or two I’ve realized how utterly socially isolated and disconnected I’ve been. I’ve barely talked to my dearest friends, I haven’t been out of the house much at all, and I definitely haven’t been outside of my comfort zone.

And I think all of that is perfectly OK and natural for a new parent. It’s a lot of hard work to nurture an infant and it felt perfectly right for me to throw myself into motherhood so fully and completely. But now that I’m emerging from the haze of my daughter’s infancy I’m reminded that it’s my commitment to my highest values that will most positively impact her life.

So, if I value authentic relating and community, then I’d better step up and start acting like it again! After I gave birth to my daughter I was amazed at how little anything else mattered any more. It was like everything that had mattered the most in my life was reduced to a tiny sliver of importance and my daughter took up 99.9% of everything that mattered to me. I can feel that shifting now.

Sure, my family is HUGELY important to me. And nurturing and supporting my husband and daughter are some of the things that matter most. But there’s a new space opening up in me that still cares about the things that mattered BEFORE parenthood. Community. Authenticity. Honesty. Facing my fears bravely. Showing up BIG in my life. Fiercely supporting my clients to make big changes in their lives.

I’ve been gone for a while. I’ve been doing what I’ve needed to do to lay a strong foundation of love and trust between my child and me. But I’m ready to step out of my comfortable little nest and make an even bigger difference in the world. It’s important to me that I continue to learn, grow, and stretch. Because reaching out and challenging myself gives me a sense of purpose and joy. I also deeply want my daughter to live a passionate and inspired life. And I know that the best way to ensure that is to model it for her, myself.

So, fair warning, I’m about to bust out and share even more of myself with you and with the world. Goodbye ‘New Parent Social Isolation’ and Hello World!

I would love to know if this was your experience of the first year of your child’s life. Did you hibernate? And was there a time when you suddenly felt ready to re-engage socially? I want to hear your story!

Tons of love, Shelly